My blogging history:
2012: diagnosed with and underwent treatment for Primary CNS lymphoma in my brain.
2012-2013: blogged on Caring Bridge.
2013: moved to Blogger.
2017: diagnosed with bladder cancer and blogged through 14 chemotherapy treatments and 37 sessions of radiation therapy, each with its own t-shirt and musical selection.
2018 to February 2020: Treated every 3 weeks with pembrolizumab for spread of bladder cancer to lymph nodes. As of June 2020, continue to be cancer free.
A few days ago, about 3 games into her winning streak, Barry
stumbled on an article about this Jeopardy champion. Last night her final
episode was aired. It is quite a story. Even with the adversity of her illness
she still managed to win six games, and pledged her winnings to support cancer
research.
Our goal this past weekend was to see something to offset
the rather morose “Manchester by the Sea,” and we certainly did choose
something quite different: “La La Land.”
The opening scene of the movie finds hundreds of cars in a traffic jam
in Los Angeles, which becomes an excuse for hundreds of drivers to leave their
cars and break into a huge dance routine.
We quickly meet the two main characters, Mia (Emma Stone)
and Sebastian (Ryan Gosling). She is an aspiring actress while he dreams of
being a jazz pianist, both of them imagining fame and fortune in their trades,
as are nearly every one of the people surrounding them. But meanwhile, she barely
makes ends meet as a barista, and he struggles to hold down gigs playing old
and tired holiday tunes in a bar. Their relationship starts slowly until they
gradually realize that they are, in many ways, kindred spirits. But as their
careers begin to take off, they are forced to travel in different directions to
pursue their dreams. We eventually catch up with them some five years later,
when they accidentally run into each other. This is followed by a wonderful
fantasy scene in which they imagine what things might have been had they stayed
together.
All in all, this was a fun and colorful movie. With all the
horrible things going on in the world right now, and our concerns as we embark
upon a very new and different administration in this country, this movie may
well be just the break the doctor ordered. So let go, let yourself enjoy for a
couple of hours!
Just had to share this wonderful piece from tomorrow’s New
York Times Sunday magazine section. This has long been one of my very favorite
Dan Fogelberg songs.
I had forgotten that yesterday was the 9th
anniversary of Dan’s untimely death at age 56 from metastatic prostate cancer. But
his music remains a beautiful legacy.
Dan talked about this song a few times that we saw him
perform over the years. The legend goes
that he had once told a friend that he could write song lyrics to pretty much
any tune, and the friend said “well, how about Tchaikovsky’s 1812 Overture?”
and the result was this song, based on a true incident in Dan’s life.
My sincerest thanks to all of you who have reached out to me
over the last few days with offers of food, prayers for good health, and lots
of love. I am feeling a bit stronger today than yesterday, and hope to stay on
that same path during the days ahead.
We took a first step back to normal life yesterday and went
to see a movie,
“Manchester by the Sea.” This film received a 97% approval
rating on Rotten Tomatoes, and quite a glowing review from A.O. Scott in the
New York Times, with whom I usually agree. But I should have been wary by the
large amount of advertising for this movie over the past couple of weeks. Maybe
I am just still in a bit of a foul mood from the recent events in my life, but
I really did not enjoy this movie. First and foremost, it was just too long and
too slow. Barry and I have some great suggestions for reworking some of the
plot that could significantly shorten and focus the movie, but I am not
expecting any phone calls from the filmmaker.
Lee (Casey Affleck) is called back to his hometown northeast
of Boston following the death of his brother, long afflicted with congestive
heart failure. The movie is about how Lee and his nephew, 16-year-old Patrick
(Lucas Hodges), work to carve out a troubled relationship and make plans for
Patrick’s continued upbringing. This is a family that has had what in Yiddish we
would call far too much tsores. In my
mind, it was so far over the top as to seem ridiculous, and was simply a distraction
from what could have been a simpler and more believable film about the
relationship between this young man and his uncle as they struggle to build a
future.
Oh, well, maybe our next pick will go a bit better.
Meanwhile, it was good to get out of the house for something other than a
medical appointment!
The last time I posted on this blog, we had just returned
from a wonderful five days at Disney World with our beautiful Ella. I was
feeling rather exhausted but just kept telling myself it was a result of the
trip, and with a little rest I would feel better.
But things do not always go the way we want them to, and day
after day I seemed only to lose rather than gain energy. In hindsight, it is embarrassing
to admit the stupidity of those days, and it took waking up early last Tuesday
morning with chest pain on breathing that I finally had to admit that I was
really sick, and we went to the emergency room at Mount Sinai.
I really should have known better, and really should behaved
more appropriately. Once a few days had passed I should have known it was time
to get in to see my pulmonologist rather than waiting until I had to be
admitted to the hospital with full blown pneumonia, and we certainly have
discussed this with her over the past week. But this particular experience was
an especially difficult lesson, because I ended up spending far too much time
in the emergency room waiting for a bed to be available so that I could be
admitted to a regular medical floor, from which I was moved yet again to a
pulmonary floor.
Here is the good news. The heavy dose of IV antibiotics
worked fairly quickly, and by Thursday evening my chest x-ray looked so good
that they said I could go home. I am still exhausted but my voice is finally
coming back and I am feeling a little bit stronger every day. Barry is making
me all of my favorite foods to try to encourage me to eat, and I am finally now
able to sit here and type this post.
My main goal for the future is to stay as far away from the
in-patient unit of the hospital as I can. You would think I had learned that
five years ago. I guess I needed a reminder.
Pictures really do speak thousands of words. Here are the
highlights of our trip to Disney World with our wonderful granddaughter, Ella.
Our flight was first thing Sunday morning, but by the time
we landed, picked up our rental car, checked in at the hotel, went to the
grocery store to pick up some food, and waited for the oxygen delivery, we had
only a short while to get to the parks, and chose to visit EPCOT first. Soarin has been updated and it is more
amazing than ever!
Soarin’
Spaceship Earth
We spent Monday at Disney’s Animal Kingdom, where Ella got a beautiful henna tattoo.
Gorillas
Kilimanjaro Safari
Flights of Wonder
Festival of the Lion
King
Finding Nemo
Kali River Rapids
On Tuesday we went to Disney’s Hollywood Studios. We arrived
early and were able to ride on Toy Story
Mania! three times without waiting, so we did!
The Great Movie Ride
Toy Story Mania!
Toy Story Mania!
The Voyage of the Little
Mermaid
Toy Story Mania!
Indiana Jones Epic Stunt
Spectacular!
For the First Time in
Forever: A Frozen Sing-Along Celebration
Fantasmic!
We stayed at the park for the evening show, Fantasmic! – it was!
We spent Wednesday at EPCOT.
Test Track
The Seas with Nemo and Friends
Ellen’s Energy Adventure
Living with the Land
Soarin’
Spaceship Earth
Frozen Ever After
Imagination with Figment
We returned to the hotel with a little time to spare for a dip in the pool.
Thursday was our last day. We had to leave by about 1 pm to catch our flight, but we managed to get on Buzz Lightyear’s Space Ranger Spin 3 times!
Buzz Lightyear’s Space Ranger Spin
Buzz Lightyear’s Space Ranger Spin
It’s a Small World
Pirates of the Caribbean
Carousel of Progress
Buzz Lightyear’s Space Ranger Spin
(The ears I am wearing in this picture were bought for
Julia)
With her henna tattoo, her Minnie watch, her mouse ears, and her infectious smile, Ella tells you all you need to know about her five days at Disney World! For her grandparents, exhausted has never felt so good.
The election is over. Half of
America is upbeat; the other half is deflated. The country is more polarized
than ever. As a rabbi, I can only offer some words of spiritual reflection.
Our point of departure is the
recognition that for many supporters of Hillary Clinton, this is a time of
mourning -- mourning that the glass ceiling of a female United States President
was not shattered; mourning that their "champion" was defeated;
mourning that their dream for America has gone awry. For some, the
disappointment is so great that it is similar to a grieving experience. At such
times, the rabbis say, the pain is so deep, the loss so profound that no words
of comfort will work.
Still, as the Talmud records,
"it is sufficient for a mourner to keep his or her period of
mourning." In other words, there are times in life when one cannot avoid
bereavement; it's built in and cannot be cast aside. In the same breath, the
Talmud uses the phrase "it is sufficient" -- teaching that one should
not elongate the mourning, one should do all he or she can to move forward.
Certainly different people
will mourn at different paces, but as many begin to move forward, I present a
kind of post-election soulful prayer.
I offer the prayer that we
remain hopeful, hopeful that once assuming office, President Trump will be
different than candidate Trump. We have seen this occur in the past;
candidates, once assuming the presidency, transform.
And many people were fearful
when Ronald Reagan -- considered by many to be a loose cannon and known by all
to have little experience in foreign relations -- assumed the presidency. He
turned it around, becoming known as "the Great Communicator,"
skillfully, forcefully but eloquently demanding that the Soviets be true to
human rights. The Cold War was grinding to a halt.
My prayer of hope is that
Trump experiences a similar transformation. Certainly he deserves -- as Hillary
Clinton and President Barack Obama gracefully said -- every chance to succeed.
And then there is the prayer
of faith, faith in the goodness of people. Clearly there are extremists on the
right that are ecstatic that Trump won. But as there are extremists on the
right, there are extremists on the left who supported Clinton.
Here, it is crucial that we
not paint over the millions of people who voted for Trump with the narrow brush
of the fringe right. Similarly, it is critical we not paint all of the people
who voted for Clinton with the narrow brush of the extreme left.
Finally, I offer the prayer of
trust, trust that the American system of government will work. This system
declares that if a president steps over the line, overreaches, he or she will
be held accountable. Not only will government and the judiciary hold the
president accountable, but the people will do the same.
This is what occurred when
Presidents Nixon and Bill Clinton, each in their own way, abused the power of
the presidency. In the end, democracy teaches that America is bigger, much
bigger, than any president.
Most important, we can all
play a role in bringing our nation together, in healing the wounds of a divisive
election. We can do this by listening to those whose pain we feel, and those
whose pain we have yet to feel. Listen to the angst of the unemployed auto
worker who fears that he will no longer be able to afford his home, and listen
to the fear of the American Muslim afraid of being villainized and attacked in
the streets of her own city.
Yes, America today is a
polarized country. It needs healing. To heal, America must view itself not only
as a nation, but as a nation-family. And the test of family is not how we
listen and care for each other when we agree, but how we do so when we
disagree. In this way, it may be possible to learn from each other, to give to
each other, forging us into a greater, more United States.
Rabbi Avi Weiss is the
founding rabbi of the Hebrew Institute of Riverdale, Bronx, NY. He is also the
founder of Yeshivat Chovevei Torah and Yeshivat Maharat rabbinical schools. The
views expressed in this commentary are his alone.
Long before planning the wedding for the first of our
daughters to be engaged, I had already selected a band for the wedding. I was not particular
about the venue or the clothing but I was passionate about the music. By the
time of that first wedding in 2000, a New York City-based band known as
Inasense was playing clubs and simchas
(joyous occasions) in and around the City. We first saw them at a Bar Mitzvah celebration and I was
hooked. I still remember going up to the lead guitarist during a break and
telling him that I had two daughters and hoped he would not be too famous to
play for us by the time we were planning weddings! In the clubs they played a
combination of old songs (including some great covers of Dylan tunes) and their
own compositions.Their
music is a mix of mainstream rock, Jewish/Middle Eastern, bluegrass, and Celtic
influences.
Inasense (as they were then known) played at Dina and Aaron’s
wedding in 2000, and we were thrilled that Simmie and Ronen also agreed to have
them two years later. Their name had changed to Soulfarm and while some band
members had come and gone, the core of C Lanzbom (guitar) and Noah Solomon (led
vocals, guitar, and various percussion instruments) remained. They recorded more
than ten albums from 1996-2015, and I am often touched when we arrive at Simmie’s
house to find her listening to their music.
I saw a post on Facebook this morning that they will release
a new album next month, Every Note the Heart Can Play. This early
release of “Colorado” is perfect for these unsettling times. As William
Congreve wrote in The Mourning Bride in 1697, “music has charms to soothe a
savage breast.”
I am not a big science fiction fan, but I love Amy Adams and
her new movie, “Arrival” had gotten fairly good reviews. To be honest it was a beautifully
done and thoughtful film. I hope I will not tell you too much to spoil it.
In “Arrival,” Amy Adams plays
a linguist working for the United States government who is summoned by NASA to
try to communicate with aliens who have landed 12 spacecraft on Earth, one in
Montana.
Before the landing, we see flashbacks from Louise's life including
the birth of her daughter, Hannah, and Hannah's death following a diagnosis of terminal
cancer.
Louise's language expertise allows her to have a
communication breakthrough with the aliens on the spacecraft, discovering that
the "heptapods," as they come to be known, emit a smoke that makes
symbols, effectively giving them written communication. While Louise works
frantically to decipher the symbols, the impatient world is ready to just
destroy the ships out of fear, but she and fellow scientist Ian (played by Jeremy
Renner) are encouraged by their progress and set out to prevent the destruction.
After seeing the movie we headed over to the 92nd Street Y to hear Bob Woodward in Conversation with Bernie Swain. I am not sure just how this would have been if the results of last Tuesday had been different, but it was certainly an animated and insightful conversation.
One benefit of last week’s presidential election is that it
must have eased the task of sermon writing for spiritual leaders around the
country. Rabbi Noah Cheses, who was hired as spiritual leader of Young Israel
of Sharon just a few months ago, spoke movingly, and I provide some excerpts
here.
Even if we are repulsed from politics at the moment, we can’t
totally disengage because there will be harmful consequences for us and for
G-d’s name if we do so. Now more than ever, the political arena needs our
voices. In a measured and thoughtful way, we need to use the Torah to help raise moral consciousness
in American society. I believe that this is the role and responsibility of Torah Jews and perhaps all ethical
monotheists at this juncture in American history.
Getting more concrete, I believe that we cannot surrender the
paramount value that the Torah places
on being a good person, on having good character and being a mentch. On
Wednesday morning, our daughter Adina asked us about the new president
elect and wanted to know some of the good things about him and some of the bad
things. We said that that he loves America but that he is not honest. Adina
responded, how could someone who lies become the president? Isn’t the
president of the America supposed to be a good person?
My heart sunk as I heard this question. There was a two second
pause in which I felt like my world as an American and as a parent was crashing
down into a million pieces.
I told Adina that we are hopeful that the president elect will
do a better job at telling the truth now that he is in a new position with new
responsibilities. I really do believe that people are capable of change,
especially when they are brought into a new circumstance. Leaving behind the
sometimes ruthless and bottom line nature of the business world and taking up
the ultimate mantel of civic duty and responsibility can change a person. My
hope is that once assuming office President Trump will be different than
candidate Trump. We have seen this happen with candidates in the past—from
Nixon to Regan--that they change upon taking a seat in the oval office.
What I didn’t tell my daughter that I will share with you is
that although I am hopeful I am also not naive. If the president elect cannot
rise to the occasion then we as Americans, as Jews and as parents need to react
and hold him accountable.
Being engaged in the political arena in the years ahead will
mean that we need to have the courage to hold the president accountable for the
character values that our Torah holds
so dear. This will not be easy but we will do it thoughtfully and we will do it
together.
I want to be clear, as I conclude and summarize my message this
morning, that this drasha (sermon)
could have been delivered even if the election results were different. I don’t
see my role as a Rabbi as taking sides or pushing my political opinions. My
role, as I see it, is to help us experience the world through a moral lens,
through the prism of Torah. We
must leave behind the bad behaviors that characterized the election process,
and recommit to the public good in a measured way by raising consciousness of
the Torah value that being a mentch (a good person) really matters.
This is how I think we can heal from the long, exhausting and
bruising election season and how we can move forward, with our moral compass
intact.
May it be Your will Hashem
(Gd) that you give us the courage to heal and to move forward with strength and
hope, with faith in the goodness of our country and the goodness of humanity.
Though we still miss the original “Not Ready for Prime Time
Players” of Saturday Night Live, we have made it a point to watch the opening
of the show over these past months. Alec Baldwin was frequently on hand to do
his uncanny Donald Trump, and cast regular Kate McKinnon has done a terrific
job as Hillary Clinton. We were anxious to see what would happen with last
night’s show. The death of Leonard Cohen was combined with the defeat of
Hillary Clinton by having Ms. McKinnon sitting at the piano in a white pant
suit playing and singing a very moving rendition of three verses of “Hellelujah”
that really spoke to the feelings so many are having this week.
Let us all take a good, deep breath (symbolically, at least for me) and do all we can to support the forces of good around us.
Today is Veterans Day. Despite, or maybe because of, the
events of this week, it would be a shame to overlook the importance of this
recognition of those who have given so much to defend our country.
Veterans Day originated as
“Armistice Day” on Nov. 11, 1919, the first anniversary of the end of World War
I. Congress passed a resolution in 1926 for an annual observance, and Nov. 11
became a national holiday beginning in 1938. In 1954, President Eisenhower
officially changed the name of the holiday from Armistice Day to Veterans Day. Veterans
Day pays tribute to all American veterans–living or dead–but especially gives
thanks to living veterans who served their country honorably during war or
peacetime.
Veterans Day is not to be confused
with Memorial Day–a common misunderstanding, according to the U.S. Department
of Veterans Affairs. Memorial Day (the fourth Monday in May) honors American
service members who died in service to their country or as a result of injuries
incurred during battle.
Just one question: why are we still adding to the ranks of
war veterans?
We awoke this morning to the sad news of the death of
Leonard Cohen. It sure has been a difficult week.