My blogging history:
2012: diagnosed with and underwent treatment for Primary CNS lymphoma in my brain.
2012-2013: blogged on Caring Bridge.
2013: moved to Blogger.
2017: diagnosed with bladder cancer and blogged through 14 chemotherapy treatments and 37 sessions of radiation therapy, each with its own t-shirt and musical selection.
2018 to February 2020: Treated every 3 weeks with pembrolizumab for spread of bladder cancer to lymph nodes. As of June 2020, continue to be cancer free.
A few days ago, about 3 games into her winning streak, Barry
stumbled on an article about this Jeopardy champion. Last night her final
episode was aired. It is quite a story. Even with the adversity of her illness
she still managed to win six games, and pledged her winnings to support cancer
research.
Our goal this past weekend was to see something to offset
the rather morose “Manchester by the Sea,” and we certainly did choose
something quite different: “La La Land.”
The opening scene of the movie finds hundreds of cars in a traffic jam
in Los Angeles, which becomes an excuse for hundreds of drivers to leave their
cars and break into a huge dance routine.
We quickly meet the two main characters, Mia (Emma Stone)
and Sebastian (Ryan Gosling). She is an aspiring actress while he dreams of
being a jazz pianist, both of them imagining fame and fortune in their trades,
as are nearly every one of the people surrounding them. But meanwhile, she barely
makes ends meet as a barista, and he struggles to hold down gigs playing old
and tired holiday tunes in a bar. Their relationship starts slowly until they
gradually realize that they are, in many ways, kindred spirits. But as their
careers begin to take off, they are forced to travel in different directions to
pursue their dreams. We eventually catch up with them some five years later,
when they accidentally run into each other. This is followed by a wonderful
fantasy scene in which they imagine what things might have been had they stayed
together.
All in all, this was a fun and colorful movie. With all the
horrible things going on in the world right now, and our concerns as we embark
upon a very new and different administration in this country, this movie may
well be just the break the doctor ordered. So let go, let yourself enjoy for a
couple of hours!
Just had to share this wonderful piece from tomorrow’s New
York Times Sunday magazine section. This has long been one of my very favorite
Dan Fogelberg songs.
I had forgotten that yesterday was the 9th
anniversary of Dan’s untimely death at age 56 from metastatic prostate cancer. But
his music remains a beautiful legacy.
Dan talked about this song a few times that we saw him
perform over the years. The legend goes
that he had once told a friend that he could write song lyrics to pretty much
any tune, and the friend said “well, how about Tchaikovsky’s 1812 Overture?”
and the result was this song, based on a true incident in Dan’s life.
My sincerest thanks to all of you who have reached out to me
over the last few days with offers of food, prayers for good health, and lots
of love. I am feeling a bit stronger today than yesterday, and hope to stay on
that same path during the days ahead.
We took a first step back to normal life yesterday and went
to see a movie,
“Manchester by the Sea.” This film received a 97% approval
rating on Rotten Tomatoes, and quite a glowing review from A.O. Scott in the
New York Times, with whom I usually agree. But I should have been wary by the
large amount of advertising for this movie over the past couple of weeks. Maybe
I am just still in a bit of a foul mood from the recent events in my life, but
I really did not enjoy this movie. First and foremost, it was just too long and
too slow. Barry and I have some great suggestions for reworking some of the
plot that could significantly shorten and focus the movie, but I am not
expecting any phone calls from the filmmaker.
Lee (Casey Affleck) is called back to his hometown northeast
of Boston following the death of his brother, long afflicted with congestive
heart failure. The movie is about how Lee and his nephew, 16-year-old Patrick
(Lucas Hodges), work to carve out a troubled relationship and make plans for
Patrick’s continued upbringing. This is a family that has had what in Yiddish we
would call far too much tsores. In my
mind, it was so far over the top as to seem ridiculous, and was simply a distraction
from what could have been a simpler and more believable film about the
relationship between this young man and his uncle as they struggle to build a
future.
Oh, well, maybe our next pick will go a bit better.
Meanwhile, it was good to get out of the house for something other than a
medical appointment!
The last time I posted on this blog, we had just returned
from a wonderful five days at Disney World with our beautiful Ella. I was
feeling rather exhausted but just kept telling myself it was a result of the
trip, and with a little rest I would feel better.
But things do not always go the way we want them to, and day
after day I seemed only to lose rather than gain energy. In hindsight, it is embarrassing
to admit the stupidity of those days, and it took waking up early last Tuesday
morning with chest pain on breathing that I finally had to admit that I was
really sick, and we went to the emergency room at Mount Sinai.
I really should have known better, and really should behaved
more appropriately. Once a few days had passed I should have known it was time
to get in to see my pulmonologist rather than waiting until I had to be
admitted to the hospital with full blown pneumonia, and we certainly have
discussed this with her over the past week. But this particular experience was
an especially difficult lesson, because I ended up spending far too much time
in the emergency room waiting for a bed to be available so that I could be
admitted to a regular medical floor, from which I was moved yet again to a
pulmonary floor.
Here is the good news. The heavy dose of IV antibiotics
worked fairly quickly, and by Thursday evening my chest x-ray looked so good
that they said I could go home. I am still exhausted but my voice is finally
coming back and I am feeling a little bit stronger every day. Barry is making
me all of my favorite foods to try to encourage me to eat, and I am finally now
able to sit here and type this post.
My main goal for the future is to stay as far away from the
in-patient unit of the hospital as I can. You would think I had learned that
five years ago. I guess I needed a reminder.