My blogging history:
2012: diagnosed with and underwent treatment for Primary CNS lymphoma in my brain.
2012-2013: blogged on Caring Bridge.
2013: moved to Blogger.
2017: diagnosed with bladder cancer and blogged through 14 chemotherapy treatments and 37 sessions of radiation therapy, each with its own t-shirt and musical selection.
2018 to February 2020: Treated every 3 weeks with pembrolizumab for spread of bladder cancer to lymph nodes. As of June 2020, continue to be cancer free.
Pictures really do speak thousands of words. Here are the
highlights of our trip to Disney World with our wonderful granddaughter, Ella.
Our flight was first thing Sunday morning, but by the time
we landed, picked up our rental car, checked in at the hotel, went to the
grocery store to pick up some food, and waited for the oxygen delivery, we had
only a short while to get to the parks, and chose to visit EPCOT first. Soarin has been updated and it is more
amazing than ever!
Soarin’
Spaceship Earth
We spent Monday at Disney’s Animal Kingdom, where Ella got a beautiful henna tattoo.
Gorillas
Kilimanjaro Safari
Flights of Wonder
Festival of the Lion
King
Finding Nemo
Kali River Rapids
On Tuesday we went to Disney’s Hollywood Studios. We arrived
early and were able to ride on Toy Story
Mania! three times without waiting, so we did!
The Great Movie Ride
Toy Story Mania!
Toy Story Mania!
The Voyage of the Little
Mermaid
Toy Story Mania!
Indiana Jones Epic Stunt
Spectacular!
For the First Time in
Forever: A Frozen Sing-Along Celebration
Fantasmic!
We stayed at the park for the evening show, Fantasmic! – it was!
We spent Wednesday at EPCOT.
Test Track
The Seas with Nemo and Friends
Ellen’s Energy Adventure
Living with the Land
Soarin’
Spaceship Earth
Frozen Ever After
Imagination with Figment
We returned to the hotel with a little time to spare for a dip in the pool.
Thursday was our last day. We had to leave by about 1 pm to catch our flight, but we managed to get on Buzz Lightyear’s Space Ranger Spin 3 times!
Buzz Lightyear’s Space Ranger Spin
Buzz Lightyear’s Space Ranger Spin
It’s a Small World
Pirates of the Caribbean
Carousel of Progress
Buzz Lightyear’s Space Ranger Spin
(The ears I am wearing in this picture were bought for
Julia)
With her henna tattoo, her Minnie watch, her mouse ears, and her infectious smile, Ella tells you all you need to know about her five days at Disney World! For her grandparents, exhausted has never felt so good.
The election is over. Half of
America is upbeat; the other half is deflated. The country is more polarized
than ever. As a rabbi, I can only offer some words of spiritual reflection.
Our point of departure is the
recognition that for many supporters of Hillary Clinton, this is a time of
mourning -- mourning that the glass ceiling of a female United States President
was not shattered; mourning that their "champion" was defeated;
mourning that their dream for America has gone awry. For some, the
disappointment is so great that it is similar to a grieving experience. At such
times, the rabbis say, the pain is so deep, the loss so profound that no words
of comfort will work.
Still, as the Talmud records,
"it is sufficient for a mourner to keep his or her period of
mourning." In other words, there are times in life when one cannot avoid
bereavement; it's built in and cannot be cast aside. In the same breath, the
Talmud uses the phrase "it is sufficient" -- teaching that one should
not elongate the mourning, one should do all he or she can to move forward.
Certainly different people
will mourn at different paces, but as many begin to move forward, I present a
kind of post-election soulful prayer.
I offer the prayer that we
remain hopeful, hopeful that once assuming office, President Trump will be
different than candidate Trump. We have seen this occur in the past;
candidates, once assuming the presidency, transform.
And many people were fearful
when Ronald Reagan -- considered by many to be a loose cannon and known by all
to have little experience in foreign relations -- assumed the presidency. He
turned it around, becoming known as "the Great Communicator,"
skillfully, forcefully but eloquently demanding that the Soviets be true to
human rights. The Cold War was grinding to a halt.
My prayer of hope is that
Trump experiences a similar transformation. Certainly he deserves -- as Hillary
Clinton and President Barack Obama gracefully said -- every chance to succeed.
And then there is the prayer
of faith, faith in the goodness of people. Clearly there are extremists on the
right that are ecstatic that Trump won. But as there are extremists on the
right, there are extremists on the left who supported Clinton.
Here, it is crucial that we
not paint over the millions of people who voted for Trump with the narrow brush
of the fringe right. Similarly, it is critical we not paint all of the people
who voted for Clinton with the narrow brush of the extreme left.
Finally, I offer the prayer of
trust, trust that the American system of government will work. This system
declares that if a president steps over the line, overreaches, he or she will
be held accountable. Not only will government and the judiciary hold the
president accountable, but the people will do the same.
This is what occurred when
Presidents Nixon and Bill Clinton, each in their own way, abused the power of
the presidency. In the end, democracy teaches that America is bigger, much
bigger, than any president.
Most important, we can all
play a role in bringing our nation together, in healing the wounds of a divisive
election. We can do this by listening to those whose pain we feel, and those
whose pain we have yet to feel. Listen to the angst of the unemployed auto
worker who fears that he will no longer be able to afford his home, and listen
to the fear of the American Muslim afraid of being villainized and attacked in
the streets of her own city.
Yes, America today is a
polarized country. It needs healing. To heal, America must view itself not only
as a nation, but as a nation-family. And the test of family is not how we
listen and care for each other when we agree, but how we do so when we
disagree. In this way, it may be possible to learn from each other, to give to
each other, forging us into a greater, more United States.
Rabbi Avi Weiss is the
founding rabbi of the Hebrew Institute of Riverdale, Bronx, NY. He is also the
founder of Yeshivat Chovevei Torah and Yeshivat Maharat rabbinical schools. The
views expressed in this commentary are his alone.
Long before planning the wedding for the first of our
daughters to be engaged, I had already selected a band for the wedding. I was not particular
about the venue or the clothing but I was passionate about the music. By the
time of that first wedding in 2000, a New York City-based band known as
Inasense was playing clubs and simchas
(joyous occasions) in and around the City. We first saw them at a Bar Mitzvah celebration and I was
hooked. I still remember going up to the lead guitarist during a break and
telling him that I had two daughters and hoped he would not be too famous to
play for us by the time we were planning weddings! In the clubs they played a
combination of old songs (including some great covers of Dylan tunes) and their
own compositions.Their
music is a mix of mainstream rock, Jewish/Middle Eastern, bluegrass, and Celtic
influences.
Inasense (as they were then known) played at Dina and Aaron’s
wedding in 2000, and we were thrilled that Simmie and Ronen also agreed to have
them two years later. Their name had changed to Soulfarm and while some band
members had come and gone, the core of C Lanzbom (guitar) and Noah Solomon (led
vocals, guitar, and various percussion instruments) remained. They recorded more
than ten albums from 1996-2015, and I am often touched when we arrive at Simmie’s
house to find her listening to their music.
I saw a post on Facebook this morning that they will release
a new album next month, Every Note the Heart Can Play. This early
release of “Colorado” is perfect for these unsettling times. As William
Congreve wrote in The Mourning Bride in 1697, “music has charms to soothe a
savage breast.”
I am not a big science fiction fan, but I love Amy Adams and
her new movie, “Arrival” had gotten fairly good reviews. To be honest it was a beautifully
done and thoughtful film. I hope I will not tell you too much to spoil it.
In “Arrival,” Amy Adams plays
a linguist working for the United States government who is summoned by NASA to
try to communicate with aliens who have landed 12 spacecraft on Earth, one in
Montana.
Before the landing, we see flashbacks from Louise's life including
the birth of her daughter, Hannah, and Hannah's death following a diagnosis of terminal
cancer.
Louise's language expertise allows her to have a
communication breakthrough with the aliens on the spacecraft, discovering that
the "heptapods," as they come to be known, emit a smoke that makes
symbols, effectively giving them written communication. While Louise works
frantically to decipher the symbols, the impatient world is ready to just
destroy the ships out of fear, but she and fellow scientist Ian (played by Jeremy
Renner) are encouraged by their progress and set out to prevent the destruction.
After seeing the movie we headed over to the 92nd Street Y to hear Bob Woodward in Conversation with Bernie Swain. I am not sure just how this would have been if the results of last Tuesday had been different, but it was certainly an animated and insightful conversation.
One benefit of last week’s presidential election is that it
must have eased the task of sermon writing for spiritual leaders around the
country. Rabbi Noah Cheses, who was hired as spiritual leader of Young Israel
of Sharon just a few months ago, spoke movingly, and I provide some excerpts
here.
Even if we are repulsed from politics at the moment, we can’t
totally disengage because there will be harmful consequences for us and for
G-d’s name if we do so. Now more than ever, the political arena needs our
voices. In a measured and thoughtful way, we need to use the Torah to help raise moral consciousness
in American society. I believe that this is the role and responsibility of Torah Jews and perhaps all ethical
monotheists at this juncture in American history.
Getting more concrete, I believe that we cannot surrender the
paramount value that the Torah places
on being a good person, on having good character and being a mentch. On
Wednesday morning, our daughter Adina asked us about the new president
elect and wanted to know some of the good things about him and some of the bad
things. We said that that he loves America but that he is not honest. Adina
responded, how could someone who lies become the president? Isn’t the
president of the America supposed to be a good person?
My heart sunk as I heard this question. There was a two second
pause in which I felt like my world as an American and as a parent was crashing
down into a million pieces.
I told Adina that we are hopeful that the president elect will
do a better job at telling the truth now that he is in a new position with new
responsibilities. I really do believe that people are capable of change,
especially when they are brought into a new circumstance. Leaving behind the
sometimes ruthless and bottom line nature of the business world and taking up
the ultimate mantel of civic duty and responsibility can change a person. My
hope is that once assuming office President Trump will be different than
candidate Trump. We have seen this happen with candidates in the past—from
Nixon to Regan--that they change upon taking a seat in the oval office.
What I didn’t tell my daughter that I will share with you is
that although I am hopeful I am also not naive. If the president elect cannot
rise to the occasion then we as Americans, as Jews and as parents need to react
and hold him accountable.
Being engaged in the political arena in the years ahead will
mean that we need to have the courage to hold the president accountable for the
character values that our Torah holds
so dear. This will not be easy but we will do it thoughtfully and we will do it
together.
I want to be clear, as I conclude and summarize my message this
morning, that this drasha (sermon)
could have been delivered even if the election results were different. I don’t
see my role as a Rabbi as taking sides or pushing my political opinions. My
role, as I see it, is to help us experience the world through a moral lens,
through the prism of Torah. We
must leave behind the bad behaviors that characterized the election process,
and recommit to the public good in a measured way by raising consciousness of
the Torah value that being a mentch (a good person) really matters.
This is how I think we can heal from the long, exhausting and
bruising election season and how we can move forward, with our moral compass
intact.
May it be Your will Hashem
(Gd) that you give us the courage to heal and to move forward with strength and
hope, with faith in the goodness of our country and the goodness of humanity.
Though we still miss the original “Not Ready for Prime Time
Players” of Saturday Night Live, we have made it a point to watch the opening
of the show over these past months. Alec Baldwin was frequently on hand to do
his uncanny Donald Trump, and cast regular Kate McKinnon has done a terrific
job as Hillary Clinton. We were anxious to see what would happen with last
night’s show. The death of Leonard Cohen was combined with the defeat of
Hillary Clinton by having Ms. McKinnon sitting at the piano in a white pant
suit playing and singing a very moving rendition of three verses of “Hellelujah”
that really spoke to the feelings so many are having this week.
Let us all take a good, deep breath (symbolically, at least for me) and do all we can to support the forces of good around us.
Today is Veterans Day. Despite, or maybe because of, the
events of this week, it would be a shame to overlook the importance of this
recognition of those who have given so much to defend our country.
Veterans Day originated as
“Armistice Day” on Nov. 11, 1919, the first anniversary of the end of World War
I. Congress passed a resolution in 1926 for an annual observance, and Nov. 11
became a national holiday beginning in 1938. In 1954, President Eisenhower
officially changed the name of the holiday from Armistice Day to Veterans Day. Veterans
Day pays tribute to all American veterans–living or dead–but especially gives
thanks to living veterans who served their country honorably during war or
peacetime.
Veterans Day is not to be confused
with Memorial Day–a common misunderstanding, according to the U.S. Department
of Veterans Affairs. Memorial Day (the fourth Monday in May) honors American
service members who died in service to their country or as a result of injuries
incurred during battle.
Just one question: why are we still adding to the ranks of
war veterans?
We awoke this morning to the sad news of the death of
Leonard Cohen. It sure has been a difficult week.
Lost in the shuffle of this presidential campaign has been
something that, under different circumstances, would have been an incredibly
big deal, namely, that we may well be breaking an enormous glass ceiling in
electing a woman to the highest office in our land. Many other countries have
long since passed this milestone, but here in the United States of America it
remains but a dream.
When it comes to human characteristics, most thinking and
sensitive people strive for color blindness. Gender blindness, however, is not
so simple. There is, at the end of the day, that bottom line difference between
men and women in continuing the species. But the question remains whether that
difference must or should influence anything other than the act of reproducing
ourselves. The election of a woman president is a clear statement that it does
not have to.
So I cast my vote this morning mindful that future
generations may be looking back on this day and admiring that the American
people had the strength and courage to step outside of their long-nurtured
comfort zone and elect the first female president of the United States. Whoever
wins, may we Americans come together and continue to work for peace and
prosperity for all.
I sat down this afternoon and started to draft a post for tomorrow.
Of course, not knowing the outcome of the presidential election, there is only
so much I can say short of writing two versions. The only common ground is that
I will be able to start with the same sentence: at least it’s finally over!
But just to lighten things up a bit, here are a few things
that came to mind.
The name Donald, which is of Celtic origins, means “proud
chief, world ruler.” I am only surprised he has not made more of a point of
this.
I am not sure if anyone has pointed this out, but in medical
jargon, DT (Donald’s initials) is used as a shorthand for Delirium tremens, which are severe alcohol withdrawal symptoms such as shaking, confusion, and hallucinations. Without the alcohol, Mr. Trump has certainly engendered plenty of agitation in the American people.
The name Hillary comes from the Latin for “cheerful girl,” perhaps
not quite as good a fit as Mr. Trump’s name.
In the Twitter world, @HRC is the name for the Human Rights
Campaign, an organization which represents a force of more than 1.5 million
members and supporters nationwide. As the largest national lesbian, gay,
bisexual, transgender and queer civil rights organization, HRC envisions a
world where LGBTQ people are ensured of their basic equal rights, and can be
open, honest and safe at home, at work and in the community.
Everyone who knows me knows that I have a difficult time
telling a short story. I appreciate that all of you who read my musings are
busy people, and in the interest of trying to respect your time I try to keep
the stories short. But I may have done a bit of injustice to the tale of the
baby shoe charm.
I still feel no need to walk you through every step of that
day, but what I failed to say was that the entire process took the better part
of the day. The first half hour was the trip to Mount Sinai for my appointment
early that morning. Then, more than 5 hours passed between the time we left
Mount Sinai for 47th Street and the time we arrived home. So, in
total, we spent 5½ hours securing that little shoe.
As we recounted the detailed story to Dina, she made an
interesting observation: it took us more time to obtain that little charm than
it took Dina to complete labor and give birth to an entire new human being!
Early this morning, I headed into The City with Barry. While
he taught his class and got some work done, I waited for my appointment for my
Sandostatin injection at a nearby Starbucks. I had started with a partially
filled oxygen cylinder, so had brought along an extra one in a second canvas
bag that fits the size tanks I use.
You do not see too many folks out and about with
supplemental oxygen. And I sometimes wonder whether people might feel nervous
watching me take an oxygen cylinder out of a bag, screw the regulator on top of
it, and open the lever to allow the oxygen to flow. I am happy to say that I
have never had such reactions, but in these somewhat dark days I found myself pondering
whether my behavior might look suspicious, and how I would react if it did.
In general, the only people who routinely stare at me with
my oxygen are children, and I often find myself explaining to them before they
even ask, because I think it is less frightening to look at this as a more
routine part of some people’s lives.
After my Sandostatin injection, we headed down to West 47th
Street, the “jewelry district.” This is
always quite an experience. The long block of 47th Street between
Fifth and Sixth Avenues is full of jewelry stores, some stand-alone but many
places where multiple small jewelers peddle their wares from individual stalls.
We had bought the baby shoe charms and necklace after our first two, Joshua and
Eliana, were born from one of these vendors our friend Judy had told us about,
and we have gone back to the same vendor each time. When Maya was born, we saw
that four charms just were not hanging in a very attractive way, and the
jeweler suggested we separate the individual shoes with gold balls. When Julia
was born, we were fortunate that Judy still had the contact information for the
jeweler, so we were able to return to the same place. And they are still right
there last saw them 2½ years ago.
As I mentioned before, in the interest of symmetry I had
reordered the little shoes to put the boy in the middle flanked by two girls on
each side. But now that we have both an oldest and a youngest boy with four
girls in between, it was only natural to put the children back together in birth order. The jeweler was busy so he said that if we wanted to get this done
today, perhaps we could string the balls and the charms ourselves. He removed the
slasp so the balls and charms would easily slip off the chain. Getting the
chain through the tiny holes in the balls turned out to be a bit challenging
but helped ensure a true 47th Street experience. So here are our six
charms, in birth order, on the necklace.
I can hear you all saying “may you wear them for many years in good health!”