My blogging history: 2012: diagnosed with and underwent treatment for Primary CNS lymphoma in my brain. 2012-2013: blogged on Caring Bridge. 2013: moved to Blogger. 2017: diagnosed with bladder cancer and blogged through 14 chemotherapy treatments and 37 sessions of radiation therapy, each with its own t-shirt and musical selection. 2018 to February 2020: Treated every 3 weeks with pembrolizumab for spread of bladder cancer to lymph nodes. As of June 2020, continue to be cancer free.
08 July 2013
A very busy few days
We have needed some
down time the last couple of days following a very hectic week. We were
supposed to go up to Sharon but Barry had caught my cold and we ended up
spending a very quiet weekend holed up in our Riverdale home. We played some
Rummikub during Sabbath afternoon, and Barry actually won two out of three
games. This may not seem particularly noteworthy, but I was actually very happy
about it because it proves to me that he is no longer just letting me win,
something he has consistently denied despite my doubts.
When I last left off
here, Ella was about to head off with her parents to the American Girl Doll
Store in Manhattan, while Barry and I were headed to Citi Field (formerly known
as Shea Stadium). They had a blast! Here is Ella with her two dolls, Julie and
Dahlia, taken when they were seated for lunch. Her smile tells the whole story.
Next time I will definitely go with her. The reason I went to the ball game
instead was that we had purchased accessible seats, so I really had to go to
that.
Meanwhile, Joshua,
Barry and I sat through a two hour – yes, two hour – rain delay at Citi Field. The
Mets were losing and it didn’t look hopeful, so we headed out to the car during
the ninth inning, as it was approaching midnight. We intended to watch the
fireworks from there and then leave before the crowds, but Joshua was exhausted
and asked us to just go home, so we did. We had all seen incredible fireworks
at Disney World so this was not a big deal.
I may have forgotten
to write about what we did on Monday. Barry and Aaron were both working, and
the weather did not look too good, so Dina and I took the children to the Museum
of Natural History. Of course the skies opened up to a torrential downpour just
as we parked the car a few blocks away, so we spent most of the day soaking
wet. But we had a great time, and we especially enjoyed the exhibit called “Our
Global Kitchen: Food, Nature, Culture.”
Thursday was July 4th,
and finally the weather cooperated! Because we had gotten home from the ball game
so late, we did not get off to quite as early a start as we would have liked,
but we packed up a lunch and some beach towels and the six of us headed off to
Jones Beach. By the time we arrived at 9:30 am, the Lot 6, the area we wanted,
was full. Lot 6 has the best accommodations for handicapped visitors, including
rental of beach wheelchairs. We were a bit concerned about how much walking I
might have to do. But fortunately, the area where we ended up had a sort of
walkway they have put along to the beach and Barry was able to push my
wheelchair along that, so that I did not have to walk very far. When we arrived
the beach was still not very crowded, but when we left around 1 pm it was
pretty much packed and people were still pouring in – I cannot imagine where
all of them squeezed in. For us, 3½ hours was more than enough of the heat and
the sun. But it really was a lot of fun, and Barry has been reading about some
other beaches we might try to check out on less crowded days during the coming
weeks, perhaps on our drives to and from Sharon. Suggestions welcome!
We barbequed dinner and everyone went to sleep early. Dina and Aaron left early with the children to stop at a couple of sites in southeastern Connecticut.
Meanwhile, Simmie and family have returned from two weeks in Israel. We spoke briefly last evening and we look forward to seeing them this weekend and hearing of all their adventures!
Tomorrow is my last music class, and we will be discussing Carole King. I am looking forward to this one.
Have a good week, and if you are in the northeast, try to stay cool!
Love,
Rebecca
05 July 2013
A couple of pictures that speak a thousand words
We had a thoroughly enjoyable last few days with Joshua and Gabriella and their parents. Time does not allow me to fill in all the details right now, but these pictures tell the whole story far better than any prose I can pen. I’ll fill in with more later, but meanwhile, have a wonderful weekend.
Love,
Rebecca
03 July 2013
The magic of music
After two
weeks of missing my Tuesday evening classes, the first when we were at Disney
World and the second when I was recovering from the trip, I finally made it
back yesterday. I felt badly leaving Dina, Joshua, and Gabriella, but there
were only two sessions left and I knew he would be covering the female
singer/songwriters from the 1960s so I did not want to miss these last
lectures. Dina, Joshua, and Gabriella had a fun day in The City, visiting the
Central Park Zoo and the Museum of Modern Art (MOMA), and taking a pedicab ride
near Times Square. We met for dinner at Noi Due, their first time at our
favorite Upper West Side hangout. They thoroughly enjoyed it! Even Ella, who
has quite discriminating taste in food, loved everything she tried. The rain
held off until later in the evening, so it all worked out well.
The female
singer/songwriters class was devoted entirely to the early career of Joni Mitchell.
If you were born before 1960 or so you are probably quite familiar with her
music. She wrote complex tunes and lyrics and sang them in a beautifully clear soprano
voice while playing a guitar or dulcimer. She wrote and recorded a number of
songs which were popularized by others, such as “Both Sides Now” (Judy
Collins), and “Woodstock” (Crosby Stills Nash and Young). In the late 1960s and
early 1970s when she was at the peak of her popularity, I enjoyed her music and
owned a few albums but was never a major devotee.
Sitting
in that class, brought nearly to tears hearing “Both Sides Now,” I wondered
why. I am sure I struggled with her complex lyrics and melodies. I have heard her
recordings often over the years but she just never “clicked” for me. But
hearing them now, I found tremendous resonance. Carole King, who is the topic
of the last class next week, and who has for forty some years been a central
component of the music in my life, is a much simpler songwriter: a lot of good
feeling, nothing too deep or mysterious. It took a long, dark, road to bring me
to a place where I could finally appreciate and connect to Joni Mitchell.
Our dear
friend, jazz pianist Leslie Pintchik, often thanks her audience for “lending
their ears.” But we in the audience bring so much more than our ears to the
music. I was never particularly fond of jazz but Leslie does something with
that piano and her music that reaches out and resonates in me. The events of
this past year have helped me to find new meaning in the long familiar. It is
not just about our ears, but about our hearts and our souls.
We spent
a lovely day with Dina and the children at the Botanical Garden. Aaron is now
headed to New York, and he will be going with Dina and Ella to the American
Girl store for dinner this evening. Barry and I hope to take Joshua to a Mets
Game: we have the tickets but it has been raining during the past half hour. Hopefully
we have seen the last of the precipitation.
If the
weather holds out for tomorrow, we are hoping to do something outdoors. All my
best for a happy and safe July 4th to all!
Love,
Rebecca
01 July 2013
A major milestone
Today is
Barry’s and my fortieth wedding anniversary. When we entered our fortieth year of
marriage last summer, it was not clear that we would make it to this milestone.
But here we are, and I have to say it’s pretty cool.
Thinking
about this, the statistician in me kicked in, and I wondered how many couples
stay married for 40 years these days. According to the U.S. Census Bureau,
Survey of Income and Program Participation (SIPP), 2008 Panel, Wave 2 Topical
Module (for information on sampling and non-sampling error, see www.census.gov/sipp/sourceac/S&A08_W1toW3(S&A-12).pdf),
50% of women and 60% of men who married between 1960 and 1964 made it to their
40th anniversaries. More
recent data is not yet available, and it is not clear whether the couples
divorced before the milestone anniversary or simply did not live long enough to
reach it. Either way, since the
percentage of couples making it to various milestone years appears to be
decreasing over time, getting to 40 years seems to be a reasonably significant
accomplishment.
Of course
none of this addresses the quality of marriages. People stay together for lots
of reasons: financial considerations, children, social pressures, convenience.
But Barry and I have been truly blessed to be content together for these forty
years. If anything, the events of this tumultuous past year have driven this
point home to us more strongly than we could have ever imagined.
When my
brother Joe and his wife Judy celebrated their 40th wedding
anniversary a couple of months ago, I learned that the traditional gift for
that milestone is rubies, and we gave them a red crystal Waterford bud vase. Barry
must have kept that in mind, and this morning he handed me a small box with a
beautiful pair of ruby earrings. After he gave them to me, he told me a funny
story. He shopped for this gift on one of the days he spent in his
office. Barry and I share credit cards, so to keep this from me he paid cash
for the earrings. The proprietor of the little Upper East Side jewelry shop was
clearly unaccustomed to patrons paying with cash, and after a bit of banter
Barry realized that she almost assuredly thought that he was not buying the earrings for his wife! After
all, how many smart, generous, good-looking guys on the Upper East Side of
Manhattan have been married to the same woman for forty years?
As we
pass this milestone, we are fortunate to have our younger daughter and her
children staying with us for a few fun-filled days in New York City, and
grateful for the blessings bestowed upon us. Let’s hope we can make it to the
half-century mark!
Love,
Rebecca
28 June 2013
Not so easy....
Don’t get
me wrong, I do not miss the good old days of standing in line to buy tickets to
concerts. But the way we do it now can be so frustrating! We were actually able
to get on Ticketmaster before the supposed on-sale time of 10 am, which made me
quite suspicious. Was there a pre-sale before
the pre-sale? We were on two separate computers, with Barry searching for fully
wheelchair accessible seats and me looking for a seat that allows the person to
transfer out of the wheelchair. I prefer the latter but either is fine: I need
the wheelchair to get from the car to the seat but I have no trouble
transferring once I am there. Barry was able to get seats while I was not. How
can that be? How can every single such seat have been gone by the start of the
pre-sale? This will forever remain a mystery.
So, I
guess we will mostly be seeing the Eagles on the screen or through binoculars,
but at least we will be there.
We are
planning a simple and quiet Sabbath this week. We thought about inviting
company but decided to allow some down time. Simmie and Ronen and the girls are
in Israel, visiting relatives and friends and sightseeing. Dina and the
children will be coming to New York first thing Sunday. Unfortunately the
weather forecast does not sound great for next week, and we were planning to enjoy
some amount of outdoor activities. We do hope to find a nice half-day for the
Botanical Gardens, and we also hope to make it to the Bronx Zoo. We have a list
of other fun things to do but we will have to see how the weather develops.
On
Wednesday, Dina and Ella will be spending the afternoon and having dinner at
the American Girl Doll Store in Manhattan while Joshua, Barry, and I are going
to a Mets game. You might be wondering how in the world it happened that I am
going to the Mets game rather than the American Girl Doll Store. Well, the Mets
tickets had been purchased a while ago, and we had ordered handicap accessible
seating since I was planning to go. Ella did not want to go to the baseball
game, so it made sense to book her visit to American Girl on the same day. So I
find myself in the somewhat amusing position of having to go to a ball game and missing American Girl. Next Friday
we plan to drive up to Sharon, and if the weather is good we will visit Mystic Seaport
on the way.
Have a
nice weekend!
Love,
Rebecca
27 June 2013
Take it easy....and I CAN tell you why!
Look what
I found in my inbox today: tickets on sale tomorrow for The Eagles at Madison
Square Garden, Friday and Saturday, November 9th and 10th. So you know what we will be doing tomorrow morning at
10 am! Wish us luck - these will go very quickly!
Love,
Rebecca
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