20 July 2017

A fond memory


We waited over two hours to see the physician at Mount Sinai yesterday. We were told there had been an “emergency.”

That reminded us of a long-ago emergency of sorts. In the months before our daughters left for college, we gave each of them a credit card to use in case of an emergency. If memory serves, Dina did not even wait to get down to the University of Maryland before her first  “emergency”: a pair of Doc Maartens boots. This memory still brings a smile, because it was so Dina! What makes it even more heartwarming is the near certainty that her older daughter will have a similar "shoe emergency" someday.

Dr. Martens Serena 8 Eye Boot


I suspect that the doctor we later saw was dealing with a true medical emergency in an oncology patient yesterday. But it was so much more entertaining to think about those simpler times.

Meanwhile, we are heading back to MSKCC this morning to meet with their medical oncologist. We hope to reach a decision about which treatment and which team within the next day or so.

Love,

Rebecca


16 July 2017

My name


One of the many prayers routinely said in Jewish synagogues is a prayer for people who are ill. Individuals can insert the names of friends or loved ones who are sick to ask for healing. So over the last few days I have received numerous requests for my Hebrew name, which is:

ּרחל שרה בת חוה אתל וניסן לב

Earlier today, I was writing to a friend, a physician in Israel, to thank him for his help and support as we “navigate these difficult waters.” No sooner did those words come out through my fingers, I realized that they were oddly appropriate as we are dealing with a disease of the urological system.

I am hoping to keep my sense of humor in tact over these challenging months ahead!

Love,

Rebecca



14 July 2017

Not the best news


First, for some good news: the catheter is out. That went well.

The discussion with the urologist was less rosy. Unfortunately, the diagnosis is a T2 high grade muscle invasive bladder carcinoma. In simple terms, this means I need further treatment, either radiation treatment to eliminate any residual cancer while preserving the bladder, or surgery to remove the bladder. In the coming days we will be consulting with the various specialists to determine the best approach.

(thanks to Barry for helping me accurately capture this)

I cannot help but thinking about the traditional Jewish prayer said after using the restroom:

Blessed are You, Lord our God, King of the universe, Who fashioned humans with wisdom, and created within them many openings and many cavities. It is obvious and known before Your throne of glory, that if but one of them were to be ruptured, or but one of them were to be blocked, it would be impossible to survive and to stand before You. Blessed are You, God, Who heals all flesh and acts wondrously.

Be well.

Love,

Rebecca



12 July 2017

B-rated


My maiden name is Belkin. When I was a little girl growing up in the Midwest, my immediate family called me “Rebbie,” which made a cute pairing with my next younger sister, Debbie, but pretty much everyone else called me “Becky.” The alliteration of that nickname and my last name led to a little boy who sat next to me in second grade composing a little ditty in which he repeated “Becky Bellybutton” over and over again, which made me laugh and earned me many reprimands from that poor teacher. I even remember the name of that little boy, Robby Schoenberg. I wonder what ever happened to him.

I shared this with Eliana last week and she found it highly amusing, asking me repeatedly to sing that little song. And then it occurred to me, I am still stuck with all those B’s, but now they are Brain and Bladder. What is next? So many other choices are available: Breast, Blood, Bone.

Becky Belkin was just two B’s. Let’s hope we can stop now at just these two.

Love,


Rebecca

10 July 2017

A week of highs and lows


02 July 2017

I am beginning this post on Sunday, July 2nd, with plans to add to it during the next ten days and post it sometime after July 10th.

For the past couple of years, on and off, I have had some urinary tract problems. I first saw a urologist back in 2015 and she thought it was a urinary tract infection and prescribed antibiotics. It improved for a while, but since then the symptoms, including blood in my urine, have come and gone. Each time I would see the urologist, and at the time of my annual gynecologic exam, the bleeding had stopped so was not observed. Recently, having more routinely observed blood in my urine, I decided it was time to try to address it and returned to the urologist. At this point she suggested we do some further testing. Meanwhile, she prescribed a medication to help the symptoms. The medication, if anything, made the symptoms worse, and despite the busy summer ahead I felt I had to once and for all figure out what was going on.

Now, actually observing blood in my urine, she encouraged me to pursue a diagnosis but I still put it off a bit, hoping it could wait until all the grandchildren had come and gone. But the symptoms were relentless and I finally decided to go in and have the cystoscopy, all the while thinking that this would simply enable her to prescribe appropriate treatment.

I had suggested Barry just drop me off and wait in his office for me to call when I was done. But within seconds after inserting the scope she told me the shocking news that I have bladder cancer. No question. I had her call Barry and he came right over.

03 July 2017

We are trying to keep busy, so in a short while Eliana will be arriving for her week with us. We are hoping this will go well, but Simmie and Ronen recognize that we may need to call on them to take her home later this week rather than waiting for next Sunday.

We have tickets for a Yankees game tomorrow and for the Broadway show “School of Rock” on Wednesday, and I am hoping I can get through those.

Meanwhile, this morning we went over to the Botanical Gardens for a bit. We were there for under two hours and I had to use the restroom twice.

06 July 2017

It has been a busy few days with Eliana. All in all I think it was a good decision to keep our plans intact. If she were not with us I think I would just be glued to my bed. At the end of the day going out and trying to have fun must be the better option, despite the now almost constant physical discomfort and the need to plan bathroom visits.

“School of Rock” was awesome!

This morning we are going back into the City. Barry is going to take Eliana to see the third installment of the “Despicable Me” movies while I go for my pre-op physical. Then we plan to head over to the Museum of Natural History for the afternoon. Tomorrow we are heading over to a place called New Roc City, a video arcade extraordinaire that looks like it has Eliana’s name written all over it!

10 July 2017

The remainder of our week with Eliana went well. She loved New Roc City. She and Barry, with a little help from me, spent six hours on Shabbat afternoon building a huge Lego kit we had bought for her. On Sunday we met Simmie in Mystic and returned home.

My surgery was scheduled for 8 am this morning, and we were told to arrive by 6. I’m going to spare you all the details, but the main hitch was that after discussions with my pulmonologist it was decided that this needed to be done under local (spinal) anesthetic if at all possible. It was, thankfully, possible, but definitely not a day at the beach. The doctor believes they got it all, but final judgement is pending the full pathology report. So now I am home dealing with the mess, not to mention discomfort, of bladder surgery. They had to leave in a catheter which will hopefully be removed on Friday.

I plan to lay pretty low this week. At some point, I will hopefully feel up to filling in the rest about our week with Eliana.

Be well, all.

Love,

Rebecca



06 July 2017

Blog post from Eliana!


Hi my name is Eliana (you probably know me) and I love Minecraft. Okay enough about MINECRAFT, let’s get on with the story…

It all started on July 5th… I went to a BROADWAY show called “School of Rock” with my #awesome grandparents and I saw the show. The end.

Who am I kidding? ‘The end’? NO. NO. NO! Okay, moving on, here are my favorite things about the show-

My favorite character: Zack, he was really funny and good.

My favorite part: The songs

My favorite song: If only you would listen

My favorite scene: Everything!


Later on, I met some of the actors when they exited the theater. Here are some photos!! Chao for now Eliana (aka AwesomeMiner11 (Minecraft user) and Ellie)



Brandon Niederauer (Zack !!!)


Eric Petersen (Dewey)


Jenn Gamhatese (Rosalie)


Eliana  (no actor!)

The week so far in pictures


We are keeping very busy and having a blast with Eliana!

More details later, but here are some pictures that pretty much tell the story.








We are having fun – hope you all are too!

Love,


Rebecca

My name

One of the many prayers routinely said in Jewish synagogues is a prayer for people who are ill. Individuals can insert the names of frien...