14 December 2020

Probably fraud?

 

A few days ago, I wrote about recognizing a long-ago colleague on the FDA Advisory Committee meeting evaluating the new COVID vaccine. Just now, the phone rang and the caller ID flashed a message I have never seen:


PROBABLY FRAUD

followed by a phone number.

I really do appreciate the warning! All of these robo-calls should have that. Needless to say, I did not answer the phone. Thank Gd for caller ID!

Tonight will be the fifth night of Chanukah, and we, presumably like many families, have made good use of Zoom this week. It is not the same as being there but at least we had a chance to light candles, sing, and watch our grandchildren open the gifts we had sent. This is literally a year for doing our best to find light in the darkness.

Unfortunately, there has been more darkness in the lives of long-time friends in Sharon. Some years ago, their daughter and her husband had a stillborn baby. The couple went on to have a healthy daughter in 2015. Then in May of 2018, they had a baby boy who was diagnosed with CHARGE Syndrome:


CHARGE syndrome is a recognizable genetic syndrome with known pattern of features. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems that delay their development and communication. 

 Although some children with CHARGE syndrome do live into their teens and beyond, this little guy had particularly severe disease and hence only made it to 2½ years. I just watched the funeral and there is really so little more I can say. This just seems like far too much pain and suffering for one family to endure.

Difficult as these times are, I am fortunate to have so much for which to be grateful.

Love,

Rebecca

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